Nash Hensley isn’t just one in a million. He’s one in 350 million and is a powerhouse despite his small stature.
At nine days old, Nash was diagnosed with phenylketonuria (PKU), a genetic disorder in which the body is missing an enzyme that helps break down protein. At four months old, Nash was also diagnosed with a form of dwarfism called achondroplasia. He’s likely the only child in the U.S. with these two disorders together.
Nash has had surgeries and countless doctor and therapy visits at Beacon Children’s Hospital, and he’ll continue to need care for some time. Due to many complications at birth, he was required to be on supplemental oxygen until past his second birthday. He walked with a walker and leg braces before gaining enough muscle strength to do it on his own.
“Nash has taught us so much through his journey and will continue to throughout his life. One thing I have learned is that God puts you right where you are supposed to be,” says Nash’s mom Angela. “He’s made me a stronger person. I think he’s made all of us stronger people.”
When Nash was selected to participate in a special event for Beacon Children’s Hospital in 2019, his mom said, “Having a day that is all about him is so special. We are truly honored for him to be recognized for who he is, the challenges he faces and the accomplishments he has made.”
We’re thrilled Nash has another opportunity to shine as an honorary Notre Dame Junior Reporter.
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